We understand how difficult it is to find healthcare professionals who have experience diagnosing and caring for NF patients. We are constantly working to expand the NF Clinic Network and add to our list of other healthcare professionals. Below you can search for a clinic that has joined our NF Clinic Network, as well as other specialists who are familiar with NF throughout the country.
For more information or questions about the NFCN, contact:
HEATHER RADTKE, MS, CGC
NF Clinic and Symposium Coordinator
hradtke@ctf.org
646-738-8574
The Neurofibromatosis Clinic Network (NFCN) was established by the Children’s Tumor Foundation (CTF) in 2007 to standardize and raise the level of neurofibromatosis (NF) clinical care nationally and integrate research into clinical care practices. The NFCN is the first nationwide network dedicated to improving clinical care and establishing best practices for treating those living with NF. The NF Clinic Network recognizes clinics that provide comprehensive medical care to individuals with NF, foster patient education, and encourage participation in clinical research trials and the NF registry. There are currently 50 NF Clinics in the NFCN that have demonstrated their ability to provide specialty care to NF patients and their families.
Click on state to view healthcare professionals who are part of our NF Clinic Network.
University of Alabama at Birmingham
UAB Neurofibromatosis Clinic • Birmingham, AL
Arkansas Children’s Hospital
Neuroscience Center • Little Rock, AR
Mayo Clinic Arizona
Clinical Genomics • Phoenix, AZ
Children’s Hospital Los Angeles
Comprehensive Neurofibromatosis Clinic • Los Angeles, CA
CHOC Children’s Hospital
CHOC Neurofibromatosis Clinic • Orange, CA
Stanford/Lucile Packard Children’s Hospital
Stanford Children's Neurofibromatosis Clinic • Palo Alto, CA
University of California, Los Angeles - UCLA
UCLA Multidisciplinary NF2 Clinic • Los Angeles, CA
Children’s Hospital Colorado
Neurofibromatosis Program • Aurora, CO
Connecticut Children’s Medical Center
Neurofibromatosis Clinic • Farmington, CT
Children’s National Health System
Jennifer and Daniel Gilbert NF Institute • Washington, DC
Nemours/Alfred I. duPont Hospital for Children
Nemours RASopathy & Neurofibromatosis Clinic • Wilmington, DE
Nicklaus Children’s Hospital
Nicklaus Children’s Hospital Neurofibromatosis Center • Miami, FL
Florida Hospital for Children
Neurofibromatosis Clinic • Orlando, FL
Johns Hopkins All Children’s Hospital
Neurocutaneous Disorders Clinic • St. Petersburg, FL
Moffitt Cancer Center
Moffitt Genetic Neuro-oncology Clinic • Tampa, FL
Emory University/Children’s Healthcare of Atlanta
Neurofibromatosis Clinic • Atlanta, GA
University of Iowa Hospitals and Clinics
Neurofibromatosis Clinic • Iowa City, IA
Ann and Robert H. Lurie Children’s Hospital of Chicago
Neurofibromatosis Clinic • Chicago, IL
University of Chicago
Neurofibromatosis Program • Chicago, IL
Riley Hospital for Children IU Health Physicians
Neurofibromatosis Clinic • Indianapolis, IN
University of Kentucky
Kentucky Neuroscience Institute Neurofibromatosis Clinic • Lexington, KY
Louisiana State University and Children’s Hospital of New Orleans
Children's Hospital Neurofibromatosis Clinic • New Orleans, LA
Boston Children’s Hospital
Multidisciplinary Neurofibromatosis Program • Boston, MA
Massachusetts General Hospital
Neurofibromatosis Clinic • Boston, MA
Johns Hopkins University
Comprehensive Neurofibromatosis Center • Baltimore, MD
Henry Ford Health System
Multidisciplinary Neurofibromatosis Clinic • Detroit, MI
University of Minnesota Masonic Children’s Hospital
Journey Clinic • Minneapolis, MN
Children’s Hospitals and Clinics of Minnesota
Neurocutaneous Syndromes Clinic • Minneapolis, MN
Mayo Clinic
Department of Clinical Genomics • Rochester, MN
SSM Health Cardinal Glennon Children’s Hospital
Neurofibromatosis Clinic • St. Louis, MO
Washington University/St. Louis Children’s Hospital
Washington University NF Clinical Program • St. Louis, MO
University of North Carolina Hospitals
UNC Hospitals Neurofibromatosis Clinic • Chapel Hill, NC
Duke University Medical Center
Duke Comprehensive Neurofibromatosis Clinic • Durham, NC
Rutgers New Jersey Medical School
The Neurofibromatosis Center of New Jersey • Newark, NJ
St. Joseph’s Regional Medical Center
Neurofibromatosis Diagnostic and Treatment Center • Paterson, NJ
Albany Medical Center
The Melodies Center • Albany, NY
Montefiore Medical Center/Children’s Hospital at Montefiore
The Neurofibromatosis Center at Montefiore • Bronx, NY
New York Presbyterian Morgan Stanley Children’s Hospital Columbia University Medical Center
Division of Clinical Genetics • New York, NY
NYU Langone Medical Center
The Comprehensive NF Center at NYU Langone • New York, NY
Golisano Children’s Hospital at University of Rochester Medical Center
Comprehensive Neurofibromatosis Clinic • Rochester, NY
Cincinnati Children’s Hospital Medical Center
The Cincinnati Neurofibromatosis Clinic • Cincinnati, OH
Cleveland Clinic Foundation
Neurofibromatosis Center • Cleveland, OH
Rainbow Babies and Children’s Hospital
Multidisciplinary Neurocutaneous Syndromes Clinic • Cleveland, OH
Nationwide Children’s Hospital
Neurofibromatosis Clinic • Columbus, OH
Ohio State University
Neurofibromatosis Clinic • Columbus, OH
University of Oklahoma Health Sciences Center
University of Oklahoma NF Clinic • Oklahoma City, OK
The Children’s Hospital of Philadelphia
University of Pennsylvania Neurofibromatosis Program • Philadelphia, PA
Children’s Hospital of Pittsburgh of UPMC
Neurofibromatosis Clinic • Pittsburgh, PA
Vanderbilt University Medical Center/Vanderbilt-Ingram Cancer Center
VICC Neurofibromatosis Clinic • Nashville, TN
UT Southwestern/Children’s Health Dallas
Neurofibromatosis Clinic • Dallas, TX
Texas Children’s Hospital/Baylor
Neurofibromatosis Clinic • Houston, TX
University of Utah
Neurofibromatosis Clinic • Salt Lake City, UT
Seattle Children’s Hospital
Neurofibromatosis Clinic • Seattle, WA
Children’s Hospital of Wisconsin
NF/RASopathy Center • Milwaukee, WI
University of Wisconsin/American Family Children’s Hospital
Comprehensive Pediatric Neurocutaneous Disorders Clinic • Madison, WI
The Melodies Center • Albany, NY
Multidisciplinary Neurofibromatosis Program • Boston, MA
Children’s Hospital of Pittsburgh of UPMC
Neurofibromatosis Clinic • Pittsburgh, PA
Children’s Hospitals and Clinics of Minnesota
Neurocutaneous Syndromes Clinic • Minneapolis, MN
Neurofibromatosis Program • Aurora, CO
Children’s Hospital Los Angeles
Comprehensive Neurofibromatosis Clinic • Los Angeles, CA
Children’s National Health System
Jennifer and Daniel Gilbert NF Institute • Washington, DC
CHOC Neurofibromatosis Clinic • Orange, CA
Cincinnati Children’s Hospital Medical Center
The Cincinnati Neurofibromatosis Clinic • Cincinnati, OH
Neurofibromatosis Center • Cleveland, OH
Duke University Medical Center
Duke Comprehensive Neurofibromatosis Clinic • Durham, NC
Neurofibromatosis Clinic • Orlando, FL
Multidisciplinary Neurofibromatosis Clinic • Detroit, MI
Johns Hopkins All Children’s Hospital
Neurocutaneous Disorders Clinic • St. Petersburg, FL
Comprehensive Neurofibromatosis Center • Baltimore, MD
Massachusetts General Hospital
Neurofibromatosis Clinic • Boston, MA
Department of Clinical Genomics • Rochester, MN
Montefiore Medical Center/Children’s Hospital at Montefiore
The Neurofibromatosis Center at Montefiore • Bronx, NY
Nationwide Children’s Hospital
Neurofibromatosis Clinic • Columbus, OH
Nemours/Alfred I. duPont Hospital for Children
Nemours RASopathy & Neurofibromatosis Clinic • Wilmington, DE
New York Presbyterian Morgan Stanley Children’s Hospital Columbia University Medical Center
Division of Clinical Genetics • New York, NY
The Comprehensive NF Center at NYU Langone • New York, NY
Rutgers New Jersey Medical School
The Neurofibromatosis Center of New Jersey • Newark, NJ
SSM Health Cardinal Glennon Children’s Hospital
Neurofibromatosis Clinic • St. Louis, MO
St. Joseph’s Regional Medical Center
Neurofibromatosis Diagnostic and Treatment Center • Paterson, NJ
Texas Children’s Hospital/Baylor
Neurofibromatosis Clinic • Houston, TX
The Children’s Hospital of Philadelphia
University of Pennsylvania Neurofibromatosis Program • Philadelphia, PA
University of Alabama at Birmingham
UAB Neurofibromatosis Clinic • Birmingham, AL
University of California, Los Angeles - UCLA
UCLA Multidisciplinary NF2 Clinic • Los Angeles, CA
Neurofibromatosis Program • Chicago, IL
University of Iowa Hospitals and Clinics
Neurofibromatosis Clinic • Iowa City, IA
University of Minnesota Masonic Children’s Hospital
Journey Clinic • Minneapolis, MN
Neurofibromatosis Clinic • Salt Lake City, UT
Washington University/St. Louis Children’s Hospital
Washington University NF Clinical Program • St. Louis, MO
Click on state to view healthcare professionals not in our NF Clinic Network. Please note this is not a complete list and the Children's Tumor Foundation does not endorse any providers listed.
If you or your child has seen additional providers you would like to add to our database, please submit info below.
If you are a healthcare professional providing care to NF patients and wish to be listed in this database, please contact Heather Radtke at hradtke@ctf.org
.Seattle Children’s Hospital
Alaska Genetics Clinic • Anchorage, AK
UC Irvine Medical Center
Neuro-Oncology Program • Orange, CA
Yale-New Haven Children’s Hospital
Pediatric Specialty Center • New Haven, CT
University of South Florida
USF Health, Division of Genetics and Metabolism • Tampa, FL
University of Florida
Dept of Pediatrics Division of Genetics and Metabolism • Gainesville, FL
Paley Orthopedic and Spine Institute
Paley Orthopedic and Spine Institute at St. Mary's Medical Center • West Palm Beach, FL
MCG Pediatric Genetics
MCG Pediatric Genetics • Augusta, GA
Hawaii Community Genetics
Kapiolani Medical Specialists • Honolulu, HI
Saint Luke’s Children’s Specialty Center
St. Luke's Children's Genetics Clinic • Boise, ID
Southern Illinois University School of Medicine
General Genetics Clinic • Springfield, IL
Indiana University Health Physicians
IU Health Neuroscience Center • Indianapolis, IN
University of Kansas Medical Center
Pediatric Neurology • Kansas City, KS
University of Louisville
Neurofibromatosis Clinic • Louisville, KY
Mass Eye and Ear Infirmary
Neuro-Ophthalmology • Boston, MA
Eastern Maine Medical Center
Pediatric Specialty Clinic • Bangor, ME
CareFirst Internal Medicine
CareFirst Internal Medicine • Flowood, MS
University of Mississippi Medical Center
University of Mississippi Medical Center • Jackson, MS
Shodair Children’s Hospital
Shodair Children's Hospital • Helena, MT
Wake Forest Baptist Medical Center
Comprehensive Neurofibromatosis Clinic • Winston Salem, NC
Dartmouth-Hitchcock Medical Center
Pediatric Medical Genetics • Lebanon, NH
University of Nevada Las Vegas School of Medicine
Genetics Clinic • Las Vegas, NV
Memorial Sloan Kettering Cancer Center
Neurofibromatosis Center • New York, NY
Oregon Health and Science University
Oregon Health and Science University • Portland, OR
Shriners Hospital for Children
Shriners Hospital for Children • Portland, OR
Randall Children’s Hospital at Legacy Emanuel
Children's Development and Rehabilitation • Portland, OR
Pittsburgh Ear Associates - Allegheny General
Pittsburgh Ear Associates • Pittsburgh, PA
Rhode Island Hasbro Children’s Hospital
Children's Neurodevelopment Center • Providence, RI
Le Bonheur Childrens Medical Center
UT Le Bonhear Pediatric Specialist • Memphis, TN
Seattle Head and Neck Clinic
Seattle Head and Neck Clinic • Seattle, WA
Radio Surgery at Swedish Medical Center
Radio Surgery at Swedish Medical Center • Seattle, WA
University of Washington
University of Washington • Seattle, WA
Virginia Mason Medical Center
Listen for Life Center at Virginia Mason • Seattle, WA
UW Medicine Harborview Medical Center
UW Medicine Harborview Medical Center • Seattle, WA
UW Cancer Center at ProHealth Care
Neurofibromatosis Clinic • Waukesha, WI
Froedtert and Medical College of Wisconsin
Neuro-Oncology Clinic • Milwaukee, WI