Our fact sheets and brochures provide in-depth information about NF and research underway to find a cure. Click on the topics of interest to view and download related materials.
To request bulk copies of fact sheets or brochures, please fill out the request form.
NF Parent Guidebook
Newly Diagnosed with NF1 (English)
Newly Diagnosed with NF1 (Spanish)
Newly Diagnosed with NF1 (Arabic)
Learning Disabilities (English)
Learning Disabilities (Spanish)
Just for Teens Living with NF1 (English)
Just for Teens Living with NF1 (Spanish)
NF1 Guide for Educators (English)
NF1 Guide for Educators (Spanish)
View educational videos about NF diagnosis, management, and research from the most recent NF Forums (our national family and patient educational gathering).
Please note links will open the Children's Tumor Foundation YouTube channel in a new tab to view the video.
For some patients, it can be challenging to find a local NF expert. With that in mind we’ve launched “Ask the Expert,” an online, interactive webinar series. Videos of NF experts speaking about a variety of topics related to NF are posted online, and viewers are invited to submit questions about the presentation topic. The answers are then posted online along with the video for everyone’s benefit. It is our goal to empower the NF community by providing the latest in NF research and knowledge in an engaging and easy-to-follow format.
Overview on Resilience, Positive Psychology, Research, and Facilitating Resilience
Using Your Brain to Tackle Pain
Neurosurgical Treatment of Brain and Spinal Tumors in NF1, NF2, and Schwannomatosis
Communications Options for Hearing Loss
Questions about NF Panel
Medical Treatment of Plexiform Neurofibromas in NF
Clinical and Imaging Manifestations in NF2 and Schwannomatosis
NF1, A Partnership Between Patient and Physician
View entire NF Forum 2016 playlist here
Pregnancy and NF
Everything you Wanted to Know About NF
Navigating Life with NF: a Coping Skills Panel
Learning Disabilities Throughout the Lifespan
Adapting to Hearing Loss
Maximizing Physical Function in NF2
Adult Medical Care
Coping with Pain
Acceptance Based Approach to Fostering Social Development
Update on Types of Drugs and Clinical Trials for NF1 and NF2
Understanding Clinical Trials - 10 Questions to Ask
Clinical Trials for Cognitive/Behavioral Issues in NF
Update on Bevicizumab for Hearing Improvement
10 Tips for Working Effectively with Your NF Team
View entire NF Forum 2015 playlist here