40 years
of fighting

Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.


Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

Get to know our NF Heroes

Latest News


Q&A: NF Hero Zoe Comiskey on Her Girl Scout Project to Help other NF Heroes and their Families

Apr 18, 2018, Posted in Community, NF Hero, NF1

Zoe Comiskey is 16 years old and lives with NF1. She is currently working on her Girl Scout Gold Award. She developed her project in conjunction with her doctors at Children’s Hospital of Philadelphia. Zoe will be meeting with newly diagnosed patients and their families to share her story and help them feel better about this new world they’ve now entered.

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Stories of NF: Colin C.

Apr 18, 2018, Posted in NF Hero, NF1

Colin was 6 years old when he was diagnosed with NF1. Colin is now 10 and is a diehard NY Jets and Michigan Wolverine fan. When he is not outside playing with his friends, you can usually catch him playing Madden 18 on the X-box. He is also a thrill seeker and will go on just about any ride out there. Colin does have to have annual MRIs and eye exams to monitor developing tumors, but luckily, he continues to live a normal child's life, playing baseball, swimming, and spending time with his friends.

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Synodos Review Committee Leader Anna Barker Receives Highest Recognition from the American Association for Cancer Research

Apr 17, 2018, Posted in Collaborations, Synodos

Children’s Tumor Foundation Synodos Review Committee Leader Anna Barker, PhD, was presented a Special Recognition Award at the Annual Meeting of the American Association for Cancer Research (AACR). This award was presented to individuals whose work has made extraordinary contributions to accelerate the prevention and cure of all cancers through research, education, communication, and collaboration.

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National Volunteer Week 2018: 40 Years of Volunteers

Apr 17, 2018, Posted in Community, Latest News

National Volunteer Appreciation Week takes on a completely new meaning this year, our 40th anniversary of the Foundation.  The National Neurofibromatosis Foundation, or NNFF, as Children’s Tumor Foundation was originally known, was born out of a patient venting her frustration to her clinician in 1978. Lynne Courtemanche, an RN, was the patient and Dr. Allan Rubenstein, the clinician. “There ought to be a place for people like me,” said Lynne and Dr. Rubenstein’s simple reply was, “So why don’t you start one?”  And so she did.

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